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3 October 2020

On Saturday, October 3, presenters from around the globe will mark World FTD Awareness Week by sharing information, helpful resources and updates on FTD through a free day long program. Full program details can be found below.

*You will be redirected to the Gotowebinar website for registration. More information

The event

Make a Connection

While COVID-19 may keep us from meeting in person, by joining this event online, you can still connect with other caregivers from others around the globe!

International

Typically, hearing international FTD presenters requires travel to far-off conferences. This year, we’ll bring the expertise to you.

Easy to Join

All sessions are free, and you can choose to join the programming in each region at any point throughout. Run through GoToWebinar, there are multiple ways to sign on, watch and learn!

When

AUSTRALIA

The 2020 World FTD Marathon will kick off in Australia.  Specialists with both clinical and research expertise from Neuropsychiatry, Royal Melbourne Hospital, and FRONTIER, the frontotemporal dementia research clinic at the Brain & Mind Centre, University of Sydney, will present an exciting program of topics covering all aspects of FTD. The presentations will be geared to families living with FTD, carers, and health professionals who want to learn about FTD.  Speakers will be available to answer your questions.  There will be over 4 hours of presentations and then the baton will be passed to our colleagues in Europe. 

10:00 AM

UTC+10

*You will be redirected to the Gotowebinar website for registration. More information

10:00 AM

UTC+01

EUROPE

The European program has specialists from Italy, the United Kingdom and the Netherlands that will be presenting and answering questions. You will receive information on the disease, biomarkers and how to cope with COVID-19 while caring for your loved one. Also the latest developments are shared.

See full program below

*You will be redirected to the Gotowebinar website for registration. More information

USA

AFTD is curating the North, Central and South American block of this event, which will run from 10 a.m. to 4 p.m. Eastern time on October 3. Expert presenters from organizations in Canada, the U.S., and Central and South America will provide the latest information on FTD, research, and support to address this disease. They will reflect on the challenges that 2020 and the COVID-19 pandemic have brought for people and families affected by FTD, and for FTD researchers, and offer reasons for hope. Presenters will be researchers, health professionals, people living with an FTD diagnosis, and caregivers and family members.

10:00 AM

UTC-10

*You will be redirected to the Gotowebinar website for registration. More information

The program

Select your region
 

PROGRAM AUSTRALIAN SESSION

Opening and Welcome

Dr Tracey Wardill
Clinical Neuropsychologist
World FTD United; AFTDA; Neuropsychology Melbourne

Dr Rosa Rademakers
President, International Society FTD

10:00 AEST

What is FTD?

Professor Olivier Piguet
Clinical Neuropsychologist
Frontier, Brain and Mind Centre, University of Sydney

10:05 AEST

Genetics in FTD

Professor Clement Loy
Neurologist
Westmead Hospital and Frontier, Brain and Mind Centre, University of Sydney

10:30 AEST

The Road to Diagnosis - Psychiatric Aspects of FTD

Professor Dennis Velakoulis & Dr Dhamidhu Eratne Neuropsychiatrists
Neuropsychiatry, Royal Melbourne Hospital

11:00 AEST

Understanding Behavioural Changes in FTD

Dr Wendy Kelso & Dr Sarah Farrand
Clinical Neuropsychologist & Neuropsychiatrist Neuropsychiatry, Royal Melbourne Hospital

11:30 AEST

Speech and Language Changes in FTD

Camille Paynter
Speech Pathologist
Neuropsychiatry, Royal Melbourne Hospital

12:00 AEST

The Caring Role in FTD

Daina Fail & Dr Samantha Loi
Social Worker & Neuropsychiatrist
Neuropsychiatry, Royal Melbourne Hospital

12:30 AEST

Grief and Loss in FTD

Mirelle D'Mello
Psychologist
Frontier, Brain and Mind Centre, University of Sydney

13:00 AEST

Clinical trials in FTD and Recent Research Findings

Associate Professor Rebekah Ahmed
Neurologist
Royal Prince Alfred Hospital and Frontier, Brain and Mind Centre, University of Sydney

13:30 AEST

You Are Not Alone – Finding Support

Dr Wendy Kelso & Daina Fail
Clinical Neuropsychologist & Social Worker Neuropsychiatry, Royal Melbourne Hospital

14:00 AEST

Passing the Baton

Dr Tracey Wardill
Clinical Neuropsychologist
World FTD United; AFTDA; Neuropsychology Melbourne

14:25 AEST